Who are we?
The Forum is a connected group of people engaging on issues facing IGO’s in the area of Medical Data and data protection and privacy.
Who can join?
Any member of IGOPA is free to join and participate in the Forum.
Forums are open to anyone, you do not necessarily have to be connected with an IGO, the idea is that people with insights and experiences in the fields of medical data and data protection can share insights.
The Forum creates space for people to share knowledge or become more aware of the issues confronting health data in IGO’s and the challenges of data protection in these circumstances.
The Forum is an online and real-life space for people to, create awareness, share knowledge and work together to find solutions for challenges.
Some members join to learn more about IGO’s, others about data protection and some to learn about medical data. Others join to share their knowledge on these topics.
Whatever your contribution or participation, you are welcome!
IGOPA has various Forums on specific topics, if this Forum is not right for you then check out the other Forums to find one that fits – or propose a new forum!
What are the benefits of the Forum?
- Learn
- Grow
- Network
- Influence
- Build you knowledge and brand
What does the Forum do?
The Forums broad aim is to improve the use and protection of medical data within the framework of Data Protection.
We connect members and facilitate growth of members knowledge through interaction.
We value sharing knowledge and building relationships to support our members. In this way we work towards ensuring IGO’s benefit from health data and its handling in terms of data protection principles.
Our growing network of members and partners work together to support each other and continuously improve the knowledge and skills of forum members in the field of Health data and data protection and privacy.
What sort of activities does the Forum have?
- We organise events, meetings, work sessions, round tables, workshops and so on.
- We work to produce discussion documents, position papers, guidelines, proposals.
- We respond to and provide comments on legislative proposals and draft responses to initiatives of other organisations.
What role do IGO’s play?
Many IGOPA members are employed at IGO’s, we therefore respond to real rather than just perceived IGO needs. However, it is important to note that members do not represent IGO’s but rather act in their personal capacity. Questions might also be referred to the Forum by IGOPA CoP or IGO’s directly.
IGO’s can however sponsor Forum events or working groups or outputs.
What kind of issues or questions does the Forum deal with?
IGO’s face unique data protection challenges when it comes to Health Data.
- What is the status IGO employee Health Data under international law? What is the impact of Covid?
- Data protection standards for employee’s health data – towards harmonised practices in IGO’s
- Medical administrators and health insurance and the practical problems of implementing data protection.
- IGO employees and Covid – best practices when travelling to member states and the intersection with privileges and immunities. What is the practical way forward?
- Can/should IGO employees be compelled to disclose their Covid status?
- Disclosing employees Covid status on IGO sites? What if the sites are in different countries with different health approaches? What happens when IGO employees must got to places where they are off site (like meetings) what disclosures and disclosure methods conform with privileges and immunities?
- How can IGO’s best use medical data for Scientific research?
- What is the impact of international law on medical data in IGO’s
- Third party medical data in IGO’s. How to deal with regulation, use and exchanges?
- What types of medical data do IGO’s have? Is there a need for a taxonomy for medical data in IGO’s?
- Polymorphic encryption a solution for IGO’s and medical data?
- Doctors and IGO’s occupational health and safety practices in the age of Covid?
- Health data and data protection do IGO’s data protection regulatory frameworks work well with GDPR in this context? What approaches work and what changes should be made?